Central America Trainings: Storytelling, Trauma & Self-Care
Conference: Freedom of Information Act - 50 Years Later
Post-Traumatic Stress Disorder – PTSD – has been an accepted diagnosis since 1980. And that's a good thing. So why is it now making controversial headlines? Why are some clinicians like myself – along with a wide range of veterans’ advocates, women’s groups and others – arguing for changing the name of the diagnosis, PTSD, to PTSI – for Post-traumatic Stress Injury?
In large part this argument has been inspired by retired General Peter Chiarelli, the former Vice Chief of Staff of the U.S. Army. After two tours in Iraq, Gen. Chiarellii grew alarmed by rising suicide rates in the Army. He reviewed every case, and came to the conclusion that many service men and women hate the term “disorder,” and suffer in silence rather than endure that label. "For a soldier who sees the kinds of things soldiers see and experience on the battlefield today, to tell them what they're experiencing is a disorder does a tremendous disservice,” he has said. “It's not a disorder. It's an injury."
Jonathan Shay, MD, PhD – whose pioneering studies of veterans earned him a Macarthur Fellowship – and I agreed with Gen. Chiarelli. We wrote to the American Psychiatric Association President, John Oldham, MD, on April 7, 2012, proposing that the new edition of the Diagnostic and Statistical Manual, currently under review, adopt the PTSI name. We wrote that there is a crisis of suicide, stigma, and misunderstanding affecting young veterans. Anything that helps them seek help is worth consideration. We then argued that the name affects civilian survivors of trauma as well – crime victims, women who are raped and battered, and others who develop the syndrome. Finally, we explained how the injury model applies to the history, theory and treatment of this condition.
(That includes journalists who cover war and have high rates of PTSD. We believe journalists, too, are injured on the job and are more like the physically wounded than the chronically mentally ill.)
Since April, this new language has received endorsements of this proposal from a wide spectrum of individuals, some of whom speak for veterans groups, some for women’s issues, and others who represent organizations that advocate for the needs of traumatized populations.
Women who survive rape, incest and battering plead with the APA for recognition of their dignity. They ask the APA to keep the basic concept behind Post-Traumatic Stress Disorder intact, but to improve the name to a phrase that they find more accurate, hopeful and honorable.
Many endorsers are men and women who have received a PTSD diagnosis, who are grateful for the help they have received, but who ask the APA, on their behalf, to re-name the condition an injury. They tell us that they will feel less stigmatized. But they also explain how the concept of an injury, rather than a disorder, does justice to their experience. Once they were whole. Then they were shattered. When their counselors, employers, friends and loved ones behaved as though they were survivors of injuries, with lingering wounds, they could heal. When they felt like mental patients and were treated as persons with pre-existing weakness, they could not heal.
Among those who share this concern are longtime leaders in understanding the impact of violence – including a previous director of National Institutes of Mental Health, Bertram S Brown, MD, MPH; the founding president of the International Society for Traumatic Stress Studies, Charles Figley, PhD; leading feminists such as Gloria Steinem; several authors of books documenting their traumatic struggles, and military and VA mental health professionals.
Jonathan Shay and I shared these letters of endorsement with the APA. We hope those who have the power to name psychiatric syndromes will eventually be persuaded, whether or not the change is adopted for this version of the DSM.
To date, we have heard the following arguments against a name change from members of the DSM-5 committee:
In response to the six arguments we hear from the DSM-5 committee members, we offer these observations:
There is another concern we must address. Some actually believe that we who advocate a name change are motivated by a desire to reduce benefits because we are associated with the military or the government. This is a red herring. Changing the name to injury is motivated by a conviction that there are many who deserve help, including benefits, and they closet themselves due to stigma and fear. The APA will change the elements of the diagnosis as outlined in DSM-5 drafts. These changes are of far more consequence than a name change to third-party payers who may seek an excuse to limit resources.
Indeed, if the APA changes the name to PTSI, all of us must make it clear that we are doing this because our patients, our potential patients, and their advocates have convinced us that this is accurate and honorable and hopeful. But we are NOT suggesting that the consequences of traumatic stress are any less significant, painful, and capable of creating disability. In fact, we believe a name change will help protect benefits by securing broader public awareness and support for those who suffer from the signature psychological injury of war, violence and human cruelty.
In sum, PTSI is a better term than PTSD. It is accurate. It does justice to the condition. It is preferred by those who contend with the condition. The APA would bring credit to itself and respect to its patients by adopting this improvement in diagnostic terminology.
When children are victims of violence, journalists have a responsibility to report the truth with compassion and sensitivity.
A 40-page guide to help journalists, photojournalists and editors report on violence while protecting both victims and themselves. Click here for a Ukrainian translation.
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